Thursday, June 14, 2012

Hello Classy Judges and Readers!



The entries that follow are excerpts (minus the reader comments) from the blog that I kept during my cancer treatment.  I hope that you enjoy reading them.

Also, please vote for me.

Also, if you are a publisher or know a publisher, shoot me a message.  I'm pretty sure that I could write a killer book about the suckfest that is cancer.

Also, please vote for me.

Thank you.

 Look What I Did!












“Since recovering I have been looking for a way to spread the word that all of us need to be advocates for our own health and wellness,” shares Liz. “I thought that getting my hair cut while talking about self-advocating for health during a student assembly would be a fun and impactful way to have this empowering conversation.”
Impactful indeed.  Thirty-three students and others signed up to join Liz and have their locks cut at the same time.  That meant finding 34 hair stylists to make the cuts.  The call went out and stylists from eleven area salons came to school to help.
The scene was organized chaos.  Students, stylists, chairs, TV crews and reporters crowded the stage, as Liz had her ponytail removed by Connie Colon Parsley '78, Upper School science teacher. As Jennifer Beissler from FIVETWOSIX Salon finished the cut and the other stylists got to work, Liz delivered her message, backed by slides from her cancer experience and accompanied by a song written especially for her by a friend.

Several local media outlets showed up to cover the event.
Some of the hair will go to Locks of Love a public non-profit organization that provides hairpieces to financially disadvantaged children in the United States and Canada who suffer from long-term medical hair loss from any diagnosis.  Other participants have designated their hair donation to Beautiful Lengths, a partnership between Pantene and the American Cancer Society that has donated thousands of free, real-hair wigs to adults living with cancer.
We are so grateful to the following for donating their time and skills to make this event such a success:
  • FIVETWOSIX
  • LaMode
  • Cole's - Eagan Station, Marketplace, Apple Valley. Burnsville. and Eagan Cedar Cliff
  • Tony's Hair Fashions
  • Bleach
  • Rocco Altobelli - Rosedale
  • The Uptown Hair District
  • And to Caribou Coffee on 55 and Dodd Road for donating coffee to start the morning off.

Tuesday, April 19, 2011

Why Must I Wear This?

Regardless of all of my experience as a patient, I fail to see how this garment is at all reasonable.

Almost all of my doctors have gone to these paper robes. I understand that, because of their compact storage size and disposability, they are convenient for the medical world, but really, I must protest.

They don't even go all the way down to my waist.

Even people with hot flashes don't want to sit in an examination room in a cropped pink paper towel.

It's inhumane.

Monday, October 25, 2010

Dear ... Everyone Who Wants Me To Do Things

Dear Everyone,

I am tired.

I am very tired.

And I am tired during almost every minute of the day in which I am not asleep.

I try to do my job without yawning and although mornings are often blurry, I don't let my children leave the house with syrup smeared across their faces. But still ... I nap at least three times a week and have contemplated whether or not it would be a misuse of sick time to go home and sleep during the work day.

Supposedly, going under general anesthesia results in several months of fatigue. I went under three times. Menopause causes hot flashes, night sweats and insomnia. Anxiety and depression are known to hinder a good night's sleep. And Tamixofen, the cancer drug that I will take for five years, has tiredness as a side effect. So, I guess this shouldn't be shocking to me.

But it's been eight and a half months! I am a zombie.

Also, I'm sad. And pretending all day that I'm not is exhausting.

To those of you who are wondering if I'm okay, I am. I'm healthy. I don't have cancer. I'm not undergoing any horrific treatments and don't have any surgeries scheduled. But in case you were unsure, it is not very helpful to say: "Are you all right? You don't look good." You can all just stop that. No one wants to hear that they look like crap.

Plus, the next time someone says that to me, I will either cry or smack them. I'm not saying which ... it's a surprise.

Sunday, June 27, 2010


This is Revolting

I'd like to begin this post with an apology to my husband. I'm going to be making fun of him, but it would be much harder to make my point without doing so. Not impossible, but I don't feel like working too hard. Plus, it's funny. Here goes.

I am not a sweaty person. I mean, I glisten like all girls, but I rarely drip.

The same cannot be said for Scott. "Glistening" is an enormously inadequate word to describe his perspiration situation. Profuse is perhaps better ... also abundant, copious and overflowing. For example, he has a stand for his bike in the basement so that he can use it during the winter. He had to drape towels on both the bar and under the bike to contain the puddles. Ick. A smart wife would avoid that area of the basement for feaf of falling into an unmarked quagmire of sodium chloride. She might even take it a step further and suggest that her darling spouse reserve biking for the warmer months, when he can just drip down the street. But, I love Scott. And for some reason that I totally don't understand, he loves to exercise. So, we do the best we can. Plus, street sweating is barely an improvement on basement puddles, because he will eventually come home. When this occurs, I am faced with a creature that vaguely resembles the one who left a few short hours ago. He's still tall and handsome, of course, except his face and neck are white. I don’t mean white, as in lacking melanin. I mean that he is white, as in coated with an unnatural film of salt that God did not intend. Yeah, I’ll give you a minute to digest that. Eeew.

The point is that I am not like this. Even when I used to do Tae Kwon Do, I stayed moderately dry. Kicking, punching and breaking boards with my bare hands were no match for my pores, which are quite good at retaining water ... like the rest of me.

However, I have recently been giving Scott a run for his money. The days are not so bad, but the evenings are gross. Every 30 minutes or so, I have a hot flash. This results in feeling that my own body is an uninhabitable inferno. In a panic, I rush to get my hair off my neck. Then, I hurry to minimize my clothing. Pant legs get pulled up and socks get tossed aside. In the comfort of my own home, I surrender to the sensation that my limbs are on fire by draping my arms and legs all over furniture, creating odd angles and positions that should only happen if you have broken several body parts and are in traction.

Then, I flail around trying to find my handheld fan. That's right. I have a handheld fan. It's from Brookstone and it's awesome, a little embarrassing, but awesome. I highly recommend it to all my friends ... in 20 years when they go through menopause. I put the fan right in front of my face, so close that I sometimes hit my nose with the "finger safe blades." And then, I sigh.

Since the weather has gotten beautiful, I have added a new move to my routine. I call it the kleenex wipe down. I've started to drip, in rival quantities to my dear husband, and it's disgusting. I could be chilly, cuddled under a blanket while watching a movie and then ... all of a sudden, I start sweating like a pig. I glisten enough that I need to mop off my forehead and some less easily accessible parts of me. Then, two minutes later, I'm cold again.

Luckily, my symptoms are in the moderate range of discomfort. Earlier this week, my doctor asked me if I have night sweats. "Yes," I replied. She asked if they wake me up from sleep. "Yes." Then, she asked if when I wake, my shirt and sheets are soaked through thereby necessitating a bedding and pajama change. Thankfully, I answered: "no."

So, I guess it could be worse. Still, though, I say: "Suck it, menopause."

Sunday, March 28, 2010

The Next Round

The decision has been made. I will be going in on Tuesday morning for a full hysterectomy. Why the full thing? Well, my tumors have put me at an increased risk for ovarian cancer, and the estrogen that the ovaries produce is now dangerous to my body. Also, the medication that I will soon start will put me at an increased risk for getting endometrial and uterine cancers. Finally, because I have a history of abnormal paps, I am at ... you guessed it ... an increased risk of developing cervical cancer.

So, soon I will have no ovaries, no uterus and no cervix. I will have at least three new scars to add to my collection, which I never wanted to start in the first place. I'll also be in menopause. Watch out!

The laparoscopic surgery is scheduled for 10:30. Scott will post an update as soon as he is able. Please pray for a successful surgery, that they do not find any more cancer, and for me to have strength. I'm doing pretty well with all of the prayers that you have been offering, so far, but a few directed ones couldn't hurt.

On a lighter note, I feel that it is very important to go into procedures such as these with a good attitude and a cheerful, hopeful spirit. That's why I wore this shirt to my mastectomy.
"This Is My Cancer Fighting Shirt."

To psych myself up for another round of injections and sutures and swelling, I wore this shirt today.

It says: "Yes they are fake! My real ones tried to kill me!"

I hope it brings you as much joy as it does me.

Oh, also. Check this out. I can almost reach straight up, now.

Pretty awesome, huh?

Tuesday, March 23, 2010

News: Some Awesome and Some Mildly Sucktastic

I had my appointment with the oncologist, yesterday. As we hoped, all of the results are back. It is somewhat of a mixed bag. Here is a summary for those of you who know things about cancer.
  • My oncotype DX recurrence score is 20.
  • My 10 year distant recurrence rate is 13%.
  • I am BRCA1 and BRCA2 negative.
  • My chemotherapy benefit is calculated at 4%.
  • My 27.29 score is 18.38.
  • My Estrone is at 26 and my Estrodiol is at 48.
So, what does all of this mean? Well, I'll start at the beginning (and I'll rate the news in case you feel like making a chart or pie graph or something.) Here goes:
  • The oncotype DX is the test that was done in California. It takes a very detailled look at my tumor samples to predict the benefit of chemotherapy and the likelihood that the cancer will recur within the next ten years. The score of 20 puts me into the intermediate risk category. (Moderately Sucktastic)
  • My 10 year recurrence rate is 13%, which is higher than we had hoped. Using simple math (which I'm sure you are all capable of doing) I have a 87% chance of making it through the next 10 years without getting breast cancer, again. I am a little disappointed by this, because I had a double mastectomy. I would have thought that would play into this number, but it doesn't. As the oncologist told us, "surgery can never get out 100% of the tissue." So, we got the tumors, but there is still a tiny amount of breast tissue, like 3%. (Mildly Sucktastic)
  • The two genetic tests that were done were BRCA1 sequencing and BRCA2 sequencing. They were both negative. This is great. It means that I am not at a 40% chance of getting ovarian cancer. It means that we do not know of a genetic reason (although there are other tests that can be done) to indicate that my daughter, my mom and my sister are in danger. (Awesome)
  • Using the information that we have from California, it is predicted that if I do chemotherapy, my chances for recurrence drop by 4%. Since this number is so low, and since chemo has so many side effects (including increased incidents of other cancers) it is decided that I will not have chemo. (Scary to not be as aggressive as possible, but Great)
  • The 27.29 test is called the Tumor Marker. It isn't so much a definitive test as a baseline. We hope to see a number below 37, so my 18.38 is okay. We will be testing this each time I see the oncologist. If it spikes, that indicates that there is caner somewhere in my body. (I will give this a rating of Average on the suckometer.)
  • Estrone and Estrodiol levels are within the normal ranges. However, since my tumors grow using estrogen, we hope for as low as possible. My oncologist said that levels are "not alarming, but I would like to see them be lower." So, ovaries out. Also, no egg freezing, which would increase the amount of estrogen too much. Also, it would be good to take out the uterus, as well, since the estrogen inhibiting medication causes an increased risk for endometrial cancer. (Vaguely Sucktastic, but not so bad.)
So, that's what we learned. Some decisions were made, yesterday, which I like. The next one to make is which doctor we use for the procedure. We have appointments this week to see a gynecological oncologist and one to see my regular gynecologist.

Stay tuned.